Family spreads awareness about rare genetic disorder

3-year-old Clayton Gard has SCN8A or Cute Syndrome.

Posted: Sep. 23, 2018 9:03 PM
Updated: Sep. 23, 2018 9:03 PM

Speech to Text for Family spreads awareness about rare genetic disorder

Below is the closed-captioning text associated with this video. Since this uses automated speech to text spelling and grammar may not be accurate.

-- disorder... their story leads off tonight's health alert... 3-year-old "clayton gard" is from marshall, illinois. he has s-c-n-8-a -- or the "cute syndrome". it's a genetic disorder that affects parts of the brain. it can cause seizures -- lack of walking or talking skills -- and little or no head control. because it's so rare -- doctors have a hard time treating it. that's why the gard family has been raising money for awareness and research since his diagnosis. "just being home you take for granted being able to leave the house without having to worry about having his rescue medicaton how long are we gonna be gone because he takes medication three times a day so having to plan all that out." the cute syndrome affects about 350 children worldwide. you can find more information on the disorder and clayton's fight on our website. that's wthi-tv-dot-com. illinois is taking a look at the gender wage
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