Fundraiser scheduled to help Wabash Valley child living with rare disorder

Friday is Cute Syndrome Awareness Day; it’s a rare genetic mutation that causes seizures and delayed development.

Posted: Feb. 9, 2018 2:41 PM
Updated: Feb. 10, 2018 7:14 AM

ILLINOIS (WTHI) - Friday is Cute Syndrome Awareness Day; it’s a rare genetic mutation that causes seizures and delayed development.

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Only 250 cases of the disorder are known world-wide with one of them in the Wabash Valley.

That's two-and-a-half year old Clayton Gard.

Since the disease is so rare - most fundraising is done by the families of affected kids.

A chili cook off fundraiser is being held next week in Clayton's honor. It will take place Feb. 13 at the Marshall High School gym from 5 to 7 p.m. (CT).

Tickets are $5 at the door.

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